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    Omanyano ovanhu koikundaneki yomalungula kashili paveta, Commisiner Sakaria takunghilile Veronika Haulenga

Bianca Ozcan

8 Results / Page 1 of 1

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Health / Medical

Rare Disease Alliance highlights the critical issues surrounding Spinal Muscular Atrophy

Bianca Özcan, The head of Rare Disease Aliiance, highlighted the critical issues surrounding Spinal Muscular Atrophy during August's Spinal Muscular Atrophy Awareness Month. The theme for this year's SMA Awareness Month is "#WeAreOne," which aims to unite diverse communities in a common goal: improving the lives of those affected by SMA. Bianca expressed her hopes for advancements in research and treatment, emphasizing the collective dream of a better world for […]

todayAugust 12, 2024 27

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Health / Medical

INTERVIEW: Spinal Muscular Atrophy Awareness Month: A Conversation with Bianca Özcan

  Windhoek, Namibia – In a recent interview with Future Media’s Leonard Witbeen, Bianca Özcan, a passionate advocate for rare diseases, highlighted the critical issues surrounding Spinal Muscular Atrophy (SMA) during August's Spinal Muscular Atrophy Awareness Month. Bianca began by addressing the profound impact SMA has on individuals and families. "SMA is a rare, progressive neuromuscular condition characterized by muscle weakness and atrophy, which can severely affect daily activities such […]

todayAugust 9, 2024 21

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Namibia

Namibia’s Bianca Ozcan Highlights Spinal Muscular Atrophy Europe’s Crucial Work

Bianca Ozcan sheds light on the critical work being done by Spinal Muscular Atrophy Europe, a non-profit organization dedicated to supporting individuals and families affected by Spinal Muscular Atrophy across Europe. Bianca had the privilege of attending the fourth Scientific Congress of SMA in Ghent, Belgium, alongside representatives from SMA South Africa and Ghana, highlighting the global reach and impact of SMA advocacy efforts.  

todayMarch 25, 2024 39

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Health / Medical

EXCLUSIVE INTERVIEW: Empowering Voices: A Conversation with Bianca Ozcan on Spinal Muscular Atrophy

In a recent interview, Bianca Ozcan sheds light on the critical work being done by SMA Europe, a non-profit organization dedicated to supporting individuals and families affected by Spinal Muscular Atrophy (SMA) across Europe. Bianca had the privilege of attending the fourth Scientific Congress of SMA in Ghent, Belgium, alongside representatives from SMA South Africa and Ghana, highlighting the global reach and impact of SMA advocacy efforts. SMA, short for […]

todayMarch 25, 2024 105

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Namibia

Alliance for Rare Diseases Unites to Tackle Challenges

Formed by Multiple Sclerosis Namibia, the Cancer Association of Namibia, and the Okanti Foundation, the Namibia Alliance for Rare Diseases is addressing unique challenges associated with rare diseases. Currently participating in the third Rare Diseases Conference in Johannesburg, spokesperson Bianca Ozcan highlights the alliance as a unifying force for smaller rare disease support groups. Ozcan stressed their collaborative efforts in addressing the specific needs of those affected by rare diseases […]

todayFebruary 19, 2024 31

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Health / Medical

Advocating for the Unseen: A Conversation with Bianca Ozcan on the Namibia Alliance for Rare Diseases

February 19, 2024/Leonard Witbeen In a recent interview, Bianca Ozcan, the head of the Namibia Alliance for Rare Diseases, sheds light on the organization's efforts and the challenges faced by those living with rare diseases in Namibia. Speaking from the Rare Diseases Conference in Johannesburg, South Africa, Ozcan emphasized the importance of raising awareness and fostering collaboration to address the unique needs of individuals with rare diseases. Building the Namibia […]

todayFebruary 19, 2024 45

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