insert_link Health / Medical Rare Disease Alliance highlights the critical issues surrounding Spinal Muscular Atrophy Bianca Özcan, The head of Rare Disease Aliiance, highlighted the critical issues surrounding Spinal Muscular Atrophy during August's Spinal Muscular Atrophy Awareness Month. The theme for this year's SMA Awareness Month is "#WeAreOne," which aims to unite diverse communities in a common goal: improving the lives of those affected by SMA. Bianca expressed her hopes for advancements in research and treatment, emphasizing the collective dream of a better world for […] today12 August, 2024
insert_link Health / Medical INTERVIEW: Spinal Muscular Atrophy Awareness Month: A Conversation with Bianca Özcan Windhoek, Namibia – In a recent interview with Future Media’s Leonard Witbeen, Bianca Özcan, a passionate advocate for rare diseases, highlighted the critical issues surrounding Spinal Muscular Atrophy (SMA) during August's Spinal Muscular Atrophy Awareness Month. Bianca began by addressing the profound impact SMA has on individuals and families. "SMA is a rare, progressive neuromuscular condition characterized by muscle weakness and atrophy, which can severely affect daily activities such […] today9 August, 2024
insert_link Namibia Windhoek Gears Up for Third Annual Multiple Sclerosis Run at SKW Sports Ground The eagerly anticipated annual Multiple Sclerosis Run returns for its third consecutive year, promising a morning of camaraderie and community spirit at the SKW Sports Ground in Olympia, Windhoek. Scheduled for Saturday, June 29 at 7 a.m., this event invites participants of all ages and abilities to join in and make a difference. Here's the MS's Bianca Ozcan. today27 June, 2024
insert_link Namibia Namibia’s Bianca Ozcan Highlights Spinal Muscular Atrophy Europe’s Crucial Work Bianca Ozcan sheds light on the critical work being done by Spinal Muscular Atrophy Europe, a non-profit organization dedicated to supporting individuals and families affected by Spinal Muscular Atrophy across Europe. Bianca had the privilege of attending the fourth Scientific Congress of SMA in Ghent, Belgium, alongside representatives from SMA South Africa and Ghana, highlighting the global reach and impact of SMA advocacy efforts. today25 March, 2024
insert_link Health / Medical EXCLUSIVE INTERVIEW: Empowering Voices: A Conversation with Bianca Ozcan on Spinal Muscular Atrophy In a recent interview, Bianca Ozcan sheds light on the critical work being done by SMA Europe, a non-profit organization dedicated to supporting individuals and families affected by Spinal Muscular Atrophy (SMA) across Europe. Bianca had the privilege of attending the fourth Scientific Congress of SMA in Ghent, Belgium, alongside representatives from SMA South Africa and Ghana, highlighting the global reach and impact of SMA advocacy efforts. SMA, short for […] today25 March, 2024
insert_link Health / Medical World Rare Disease Day Highlights Global Impact and Advocates for Awareness today29 February, 2024
insert_link Namibia Alliance for Rare Diseases Unites to Tackle Challenges Formed by Multiple Sclerosis Namibia, the Cancer Association of Namibia, and the Okanti Foundation, the Namibia Alliance for Rare Diseases is addressing unique challenges associated with rare diseases. Currently participating in the third Rare Diseases Conference in Johannesburg, spokesperson Bianca Ozcan highlights the alliance as a unifying force for smaller rare disease support groups. Ozcan stressed their collaborative efforts in addressing the specific needs of those affected by rare diseases […] today19 February, 2024
insert_link Health / Medical Advocating for the Unseen: A Conversation with Bianca Ozcan on the Namibia Alliance for Rare Diseases February 19, 2024/Leonard Witbeen In a recent interview, Bianca Ozcan, the head of the Namibia Alliance for Rare Diseases, sheds light on the organization's efforts and the challenges faced by those living with rare diseases in Namibia. Speaking from the Rare Diseases Conference in Johannesburg, South Africa, Ozcan emphasized the importance of raising awareness and fostering collaboration to address the unique needs of individuals with rare diseases. Building the Namibia […] today19 February, 2024
