insert_link Namibia Namibia’s Bianca Ozcan Highlights Spinal Muscular Atrophy Europe’s Crucial Work Bianca Ozcan sheds light on the critical work being done by Spinal Muscular Atrophy Europe, a non-profit organization dedicated to supporting individuals and families affected by Spinal Muscular Atrophy across Europe. Bianca had the privilege of attending the fourth Scientific Congress of SMA in Ghent, Belgium, alongside representatives from SMA South Africa and Ghana, highlighting the global reach and impact of SMA advocacy efforts. todayMarch 25, 2024 17
insert_link Health / Medical EXCLUSIVE INTERVIEW: Empowering Voices: A Conversation with Bianca Ozcan on Spinal Muscular Atrophy In a recent interview, Bianca Ozcan sheds light on the critical work being done by SMA Europe, a non-profit organization dedicated to supporting individuals and families affected by Spinal Muscular Atrophy (SMA) across Europe. Bianca had the privilege of attending the fourth Scientific Congress of SMA in Ghent, Belgium, alongside representatives from SMA South Africa and Ghana, highlighting the global reach and impact of SMA advocacy efforts. SMA, short for […] todayMarch 25, 2024 68
insert_link Health / Medical World Rare Disease Day Highlights Global Impact and Advocates for Awareness todayFebruary 29, 2024 45
insert_link Namibia Alliance for Rare Diseases Unites to Tackle Challenges Formed by Multiple Sclerosis Namibia, the Cancer Association of Namibia, and the Okanti Foundation, the Namibia Alliance for Rare Diseases is addressing unique challenges associated with rare diseases. Currently participating in the third Rare Diseases Conference in Johannesburg, spokesperson Bianca Ozcan highlights the alliance as a unifying force for smaller rare disease support groups. Ozcan stressed their collaborative efforts in addressing the specific needs of those affected by rare diseases […] todayFebruary 19, 2024 4
insert_link Health / Medical Advocating for the Unseen: A Conversation with Bianca Ozcan on the Namibia Alliance for Rare Diseases February 19, 2024/Leonard Witbeen In a recent interview, Bianca Ozcan, the head of the Namibia Alliance for Rare Diseases, sheds light on the organization's efforts and the challenges faced by those living with rare diseases in Namibia. Speaking from the Rare Diseases Conference in Johannesburg, South Africa, Ozcan emphasized the importance of raising awareness and fostering collaboration to address the unique needs of individuals with rare diseases. Building the Namibia […] todayFebruary 19, 2024 26
Paying it forward: Kenyan coastal doctor Bashrahil Mohammed Mafudh has made it his life’s work to care for the most vulnerable in his community, at no cost.