RARE DISEASE conference

Formed by Multiple Sclerosis Namibia, the Cancer Association of Namibia, and the Okanti Foundation, the Namibia Alliance for Rare Diseases is addressing unique challenges associated with rare diseases. Currently participating in the third Rare Diseases Conference in Johannesburg, spokesperson Bianca Ozcan highlights the alliance as a unifying force for smaller rare disease support groups. Ozcan stressed their collaborative efforts in addressing the specific needs of those affected by rare diseases […]