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    Omanyano ovanhu koikundaneki yomalungula kashili paveta, Commisiner Sakaria takunghilile Veronika Haulenga

Spinal Muscular Atrophy

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Health / Medical

Rare Disease Alliance highlights the critical issues surrounding Spinal Muscular Atrophy

Bianca Özcan, The head of Rare Disease Aliiance, highlighted the critical issues surrounding Spinal Muscular Atrophy during August's Spinal Muscular Atrophy Awareness Month. The theme for this year's SMA Awareness Month is "#WeAreOne," which aims to unite diverse communities in a common goal: improving the lives of those affected by SMA. Bianca expressed her hopes for advancements in research and treatment, emphasizing the collective dream of a better world for […]

todayAugust 12, 2024 23

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Health / Medical

EXCLUSIVE INTERVIEW: Empowering Voices: A Conversation with Bianca Ozcan on Spinal Muscular Atrophy

In a recent interview, Bianca Ozcan sheds light on the critical work being done by SMA Europe, a non-profit organization dedicated to supporting individuals and families affected by Spinal Muscular Atrophy (SMA) across Europe. Bianca had the privilege of attending the fourth Scientific Congress of SMA in Ghent, Belgium, alongside representatives from SMA South Africa and Ghana, highlighting the global reach and impact of SMA advocacy efforts. SMA, short for […]

todayMarch 25, 2024 97

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