insert_link Health / Medical Rare Disease Alliance highlights the critical issues surrounding Spinal Muscular Atrophy Bianca Özcan, The head of Rare Disease Aliiance, highlighted the critical issues surrounding Spinal Muscular Atrophy during August's Spinal Muscular Atrophy Awareness Month. The theme for this year's SMA Awareness Month is "#WeAreOne," which aims to unite diverse communities in a common goal: improving the lives of those affected by SMA. Bianca expressed her hopes for advancements in research and treatment, emphasizing the collective dream of a better world for […] todayAugust 12, 2024 25