Rare Disease Alliance highlights the critical issues surrounding Spinal Muscular Atrophy

Bianca Özcan, The head of Rare Disease Aliiance, highlighted the critical issues surrounding Spinal Muscular Atrophy during August’s Spinal Muscular Atrophy Awareness Month. The theme for this year’s SMA Awareness Month is “#WeAreOne,” which aims to unite diverse communities in a common goal: improving the lives of those affected by SMA. Bianca expressed her hopes for advancements in research and treatment, emphasizing the collective dream of a better world for individuals with SMA.